RSV
January 7th, 2010 | 
Author: RSV- Respiratory Syncytial Virus
I believe all of our little CDH babies are recommended to get the RSV shot or also called synagis. However, not all babies can get the approval for the synagis. It was very easy for us to get the approval as I have fantastic insurance … you may be thinking- insurance?! What does insurance have to do with the approval of receiving synagis to protect our babies?! Yea I was floored about this too!
Apparently, the insurance company is the main factor is achieving approval for RSV protection. It’s an expensive shot, but it protects our babies from getting RSV. So your doctor may say yes, your baby needs this, but it’s up to your insurance company if you get it or not! RSV could be fatal to our babies and insurance companies may not understand that. I do know some of you had quite a battle to get the insurance company to approve.
I believe it is 6 shots that truly protects our babies from RSV. They get one shot a month (unless they weigh more than 17lbs- then they get two shots a month). It should start about October and end in April… the end of the nasty flu season! Now, just recently I have found out that the synagis aren’t total protection! Which I thought they were… but NO! Apparently these synagis help to prevent our babies from getting RSV but there is a chance they can still get it. And if the baby does get RSV, at least getting the synagis will help prevent from getting too terribly bad. But it’s still not good for our babies to get RSV.
Before Kayla, I had never heard of RSV. My sister’s baby, Alaina had it, but I never really knew it was RSV- until I had to learn what it was.
Premature babies need this protection as well!
How many of you struggled to get the RSV protection for your baby? How many of you still do not have that approval? How has the flu/rsv season been to you so far?!
Praying for a healthy winter for all!!!
Posted in 
What is really strange about our insurance is that it approved the RSV shot all through the summer. My pediatrician would request it and then we would just wait and see, and they approved it each month! Now Dakota turned one year on December 25th and our pediatrician cautioned me that sometimes they reevaluate after the child turns one, especially given that Dakota is “pretty medically normal” in her terms now. She would still fight for it for her until April if we can. It is good to hear that Dakota is getting to be close to being medically normal, but in my eyes, she will always be more fragile and I hope they continue the shots till April. I just called and they sent the one for January – YAY!